IWGGD
Search

Ethics

scientific-meetings

Introduction and Objectives

The ethics groups will arrange discussion of ethical questions relevant to the care of Gaucher patients throughout the world. A Preliminary meeting between the IGA and EWGGD boards occurred. Anyone interested should get in touch with Derralynn or Tanya and we will be providing further information on the program of talks and discussions later in the year.

Projects

Information to come

Members

Information to come

Updates

Information to come

Join

Working group selection
This field is for validation purposes and should be left unchanged.

Other working groups

Gaucher Disease Diagnostic

The group discusses technical and ethical issues associated with the diagnostic process of Gaucher disease, including biochemical and molecular diagnosis, newborn screening, IA, and other diagnostic techniques

right-arrow

Management and Monitoring

The group will create guidelines for the management and monitoring of GD which can be used internationally to improve experience and outcomes for Gaucher patients

right-arrow

Gaucher Disease Additional Morbidities

The group has first discussed extensively that we should move away from “complications’ or ‘co-morbidities’ and define the occurrence of disorders that can be related or unrelated to GD as “additional morbidities”

right-arrow

Supportive Care

Working on projects related to patient care that do not fall under the category of the other working groups

right-arrow

Laboratory

Discussing GD’s laboratory aspects, including (but not exclusively): biomarkers, biological materials, NGS technics, abnormalities other than those of the GBA gene, etc.

right-arrow
Scroll back to top